Isa-Bella Leclair unfortunately has Parkes Weber syndrome, but that did not stop her from sporting a colorful bikini in a recent photo.
She has even shown other sufferers of the malformation that they, too, can wear revealing clothing and not be ashamed of the way they look.
"The hardest thing with living with PWS is living with the uncertainty of what is going to happen next and accepting that," Leclair told People. "PWS is such a rare condition with next to no research, so you just have to treat it as it goes. It's important to just live in the moment and not worry."
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